Partnerships

Deep Brain Stimulation

brainlab
A new partnership bringing together a world-class DBS Solution
Brainlab develops, manufactures and markets software-driven medical technology, enabling access to advanced, less invasive patient treatments. For the last 25 years, Brainlab has been dedicated to innovation and best practice in the fields of surgery, radiotherapy, medical image sharing and digitally integrated operating rooms. Boston Scientific is a medical technology leader focused on transforming lives through innovative medical solutions that improve patient health. Together Brainlab and Boston Scientific cover nearly all key elements associated with the DBS procedure.  Our collaboration provides patients and physicians a comprehensive portfolio for DBS therapy. As part of the agreement, Boston Scientific distributes the Brainlab DBS surgical planning portfolio with the Boston Scientific Vercise™ DBS Systems in select countries.
https://www.brainlab.com/en/
dystonia

Dystonia Europe (DE) and The European Parkinson’s Disease Association (EPDA are collaborating with Boston Scientific Corporation to increase awareness, understanding of solutions and to take initiatives in the worldwide fight against Parkinson’s disease and dystonia, two areas of high unmet need. Under the terms of these equal partnerships, Dystonia Europe, the EPDA and Boston Scientific will work together on practical initiatives to improve Parkinson’s and dystonia care in Europe.

About Dystonia Europe
Dystonia Europe – Connecting People for Dystonia
Dystonia Europe is the platform at the European level for all dystonia stakeholders in Europe. DE works in partnership with patient advocacy groups, clinicians, researchers, healthcare professionals, and the pharmaceutical and medical device industry. By connecting people across Europe, DE aims to raise awareness, spread information and promote research within the field of dystonia.

For more information please visit https://dystonia-europe.org

EPDA

About EPDA
The European Parkinson’s Disease Association (EPDA) is the only European Parkinson’s disease umbrella organisation. Founded in 1992, EPDA is a non-profit organisation advocating for the rights and needs of those living with Parkinson’s and their caregivers.

For more information please visit https://www.epda.eu.com/en

Spinal Cord Stimulation

Pain Alliance Europe

Pain Alliance Europe (PAE) was founded in the European Parliament in 2011. It is a Pan-European umbrella organisation of 28 national associations in 15 EU Member States, representing over 300 000 individual chronic pain patients.
For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live his life according to his possibilities and wishes.
The strategic objectives of the organisations are to promote awareness for chronic pain, to promote a European policy on chronic pain and to reduce the impact of chronic pain on the European society on all areas.
These are to be achieved by :
Working in close relation with the other stakeholders
Gather and distribute relative information on chronic pain from the patients point of view
Establish a good relation with potential sponsors
Promote and or initiate research on chronic pain
Growing the association
Obtaining visibility through events, website, media coverage
https://www.pae-eu.eu

ISAL Foundation

ISAL Foundation was established in 1993 and promotes knowledge, scientific research and training in the field of pain therapy. Today, ISAL is the leading pain association in Italy, thanks to a widespread support network.
The ISAL Foundation actively participates in four main areas:
RESEARCH TRAINING
The Foundation strongly believes in the value of scientific research and dedicates its professional resources on various projects, including both experimental and epidemiological studies.

ISAL Foundation provides advanced courses in Algological Sciences, addressed to medical specialists who wish to become expert in chronic pain therapy.

 

 
VOLUNTEERING AWARENESS

Thanks to a wide network of associations, ISAL supports the Italian health care facilities by providing materialsand equipment and granting research fellowships and awards to doctors and biologists. 

 

 ISAL Foundation has for many years a strong action to raise awareness of citizens and media on the subject of pain. Since 2009 ISAL Foundation have been started the World Day “100 cities against pain”, an yearly event involving Italian and International squares which aims to disseminate information on chronic pain and the possibility of cure.
ISAL Foundation is a founding member of Federdolore-SICD, the main scientific society for pain therapy in Italy. https://www.fondazioneisal.it/en/

AFVD

AFVD is a non-profit patient organization created in 2006 by Martine Chauvin, a chronic back pain sufferer who struggled for years to find the right treatment for her pain until she was offered spinal cord stimulation. Martine created AFVD to help other pain patients by sharing her experience and with the vision that her association could help accelerate access to care and pain management.
AFVD has two main objectives :
1.Change the way chronic pain is considered
Chronic pain should be recognized as a disease by itself, causing physical impairment, psychological distress, and socio-professional difficulties. AFVD activities are fully dedicated and intended to improve chronic pain prevention, diagnosis and management.
2.Help and support patients suffering from chronic pain
Inform patients and their relatives about pain management solutions, change patients behaviors towards pain, share experiences, and help them to claim for support and treatment.
AFVD has been recognized as a public interest association in 2008. AFDV is a foundational member of Pain Alliance Europe since 2012 and has received the Agrément National Award for its representation of members in different hospital departments or public health authorities. AFDV is also a member of CISS (Collectif Inter-associatif Sur la Santé) in regions.
https://www.association-afvd.com
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