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Health Conditions / Chronic Pain / Resources / Support Groups

Support Groups

Whether you are a considering a Spinal Cord Stimulator (SCS) or RadioFrequency Ablation (RFA), are in the process of getting it, or already have one, we’ve provided some links to helpful support groups that can provide additional information about pain management.

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Pain Alliance Europe
Pain Alliance Europe (PAE) was founded in the European Parliament in 2011. It is a Pan-European umbrella organisation of 40 national and European associations in 17 EU countries, representing over 400 000 individual chronic pain patients.

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Pain UK
Pain UK is an alliance of charities providing a voice for people in pain, founded in November 2011. It is an umbrella charity for many of the charities in the UK who support people who live with pain of any description.

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Fondazione ISAL
ISAL Foundation was established in 1993 and promotes knowledge, scientific research and training in the field of pain therapy. Today, ISAL is the leading pain association in Italy, thanks to a widespread support network.

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Association Francophone Pour Vaincre Les Douleurs (AFVD)
The AVFD was created in 2006. It is a patient association for patients with chronic pain, and their relatives, which brings together around 150 members, patients, relatives and friends, volunteers and employees throughout the national territory.

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Deutsche Schmerzliga e.V.
The Deutsche Schmerzliga e.V., the organization for patients with chronic pain, was founded by patients and physicians in 1990 as a non-profit association. From 1997 to 2011, the internist, author and television presenter Dr. med. Marianne Koch headed the board as president.

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UVSD SchmerzLOS e.V.
The Independent Association of Active Pain Patients in Germany SchmerzLOS was founded on February 4, 2011. The purpose of the association is to improve the situation of people suffering from pain, to educate the population about the prevention and treatment of pain with the aim of preventing its chronicity and alleviating suffering in existing pain disorders.

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CRPS Selbsthilfe
This platform is aimed at people suffering from a disease called Sudeck's disease, reflex dystrophy, Sudeck's dystrophy, algodystrophy or sympathetic reflex dystrophy - just to name a few names of this disease. Most commonly used today is the term Komplexes regionales Schmerzsyndrom / Complex Regional Pain Syndrome, or CRPS for short.

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Deutsche Gesellschaft für Neuromodulation e.V.
The "Deutsche Gesellschaft für Neuromodulation e.V." (DGNM) is an association of physicians active in research and teaching, as well as scientists who are active in the field of neuromodulation or have an interest in the subject. The DGNM has set itself the task of collecting new research results, evaluating them and making them available in a scientific documentation.

Deutsche Schmerzgesellschaft e. V.
The Deutsche Schmerzgesellschaft e.V. (German Pain Society) is the largest scientific-medical society in the field of pain in Europe, with around 3,600 personal members.Its membership is interdisciplinary and interprofessional and consists of pain experts from practices, clinics, psychologists, nursing, physiotherapy, and others, as well as scientifically proven pain researchers from research, academia, and teaching. The German Pain Society was founded on 8.9.1975 as the German section of the International Association for the Study of Pain (IASP).
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